At just 6 years old, Madison Morrison has earned the nickname “Miracle Maddy” after recovering from life-saving surgery at CHOC. The spunky girl, who loves listening to music and drawing, defied the odds of survival when the flu caused encephalitis (viral meningitis with life-threatening brain swelling). Within 48 hours of being taken to the Julia and George Argyros Emergency Department at CHOC Hospital, Maddy underwent emergency brain surgery and was placed in a medically induced coma. For the next two months, her parents remained by her bedside in the pediatric intensive care unit (PICU).
Mike, Maddy’s dad, says February 4 marked the beginning of their journey. He and his wife Angel never imagined a trip to the emergency department for vomiting would end with their youngest child fighting for her life. On the evening of her admission, Maddy’s nurse immediately noticed when her patient became unresponsive and her pupils became fixed and dilated – grave findings suggestive of dangerous brain swelling. Maddy was intubated, placed in a coma and underwent surgery to have a device placed in her brain to measure and help reduce the pressure inside her skull. Given the fixed volume of the skull, there is little room to accommodate for brain swelling. As it does, the pressure in the skull increases. Seizures, strokes and even death can occur if the pressure rises significantly.
The pressure inside Maddy’s skull remained very high. Her physicians feared she would not survive. After all medical interventions failed to control the brain swelling and lower the pressure in her skull, and after a scan revealed Maddy was at imminent risk of death, CHOC neurosurgeon Dr. William Loudon presented Mike and Angel with one final measure: a decompressive craniectomy, a surgery in which part of the skull is removed to allow a swelling brain to expand beyond the normal confines of the closed skull.
“Dr. Loudon patiently explained everything, including the risks, and assured us he’d care for Maddy as though she was his own daughter,” recalls Mike. “We were naturally frightened, but we had confidence in him and trusted he would do everything in his control to save her.”
Mike adds, “He kept his word. We will forever be grateful to him.”
Maddy remained in a coma as she continued to heal. Her PICU care team became, in her parents’ words, “the protectors.”
“Without ever hearing her voice or experiencing her outgoing personality, the team stood by Maddy’s side to not only protect her and save her life, but to love her. The people in CHOC’s PICU are special. There’s no way to understand the emotion and bonds created in that unit unless you’ve been there and experienced the passion within the entire team and the love they have for their jobs, their patients and their parents,” shares Mike.
The PICU team rallied with Mike and Angel when Maddy came out of the coma. She still had a tough recovery ahead, but with the help of CHOC’s speech, physical and occupational therapists, she relearned to walk, talk and eat.
The day Maddy was discharged from the PICU was bittersweet. Her parents were thrilled to be taking her home but sad to say goodbye to the staff who had become part of their family.
Angel explains, “Not only did the people in the PICU save Madison’s life, they were smiling faces to us day in and day out. They were a big part of our encouragement, while sharing in our hope and our worry. I was grateful to leave the PICU but sad to leave so many amazing people.”
Shortly after arriving home, Maddy was living up to her nickname. Walking laps around her home, dancing to her favorite songs and enjoying some Snapchat fun, she was putting her hospital stay behind her and focusing on the joys of childhood. And her CHOC family wouldn’t want it any other way for their “Miracle Maddy.”
Batten disease patients highlight CHOC’s growing reputation as a destination for kids with rare conditionsCHOC is the largest Brineura infusion center in the country and the second largest in the world to treat Batten disease, a rare neurological condition that affects children.
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