Two Oncologists with Special Interest in Immunotherapy Join Hyundai Cancer Institute at CHOC Children’s

Two oncologists have joined the team of nationally-recognized specialists of the Hyundai Cancer Institute at CHOC Children’s. Dr. Josephine HaDuong and Dr. Ashley Plant were both fellowship trained at two of the country’s top cancer programs, and share research interest in immunotherapy and targeted therapies.

Dr. Josephine HaDuong is board-certified in pediatric hematology and oncology, and was drawn to the Cancer Institute for what she refers to as its gold standard of care.

“The Hyundai Cancer Institute is a growing center that strives to be among the best. The team provides patients access to cutting-edge clinical trials that may lead to breakthroughs in pediatric cancer,” says Dr. HaDuong.

Her research is driven, in large part, by her clinical interest in caring for patients with solid tumors. A published author and principal investigator in a number of studies, Dr. HaDuong’s major research activities include exploring developmental therapeutics in solid tumors using immunomodulatory and targeted agents, as well as functional imaging in bone and soft tissue sarcomas using magnetic resonance spectroscopy.

Following medical school at the University of Pittsburgh, where she earned a full tuition merit scholarship, Dr. HaDuong completed her residency and pediatric hematology/oncology fellowship training at Children’s Hospital Los Angeles. She was honored with the Fellow of the Year, Excellence in Teaching Award.

She is a member of numerous professional associations, including American Society of Clinical Oncology, American Society of Pediatric Hematology and Oncology, and North American Consortium for Histiocytosis. In addition to English, she speaks Spanish and Vietnamese.

Raised in Orange County, Dr. HaDuong is thrilled to be back in her hometown. “I have always wanted to return home to serve the children and families in Orange County. I look forward to being a part of an incredible team who works relentlessly to end cancer,” says Dr. HaDuong.

Dr. Ashley Plant is committed to growing CHOC’s neuro-oncology treatment program, and eager to bring new therapies to patients with brain tumors. “I look forward to collaborating with academia and industry to bring early clinical trials to CHOC, especially in the area of immunotherapy. I am also excited to partner with my new colleagues to advance the work the Cancer Institute has been doing to reduce the long-term toxicities of cancer therapy,” says Dr. Plant.

Dr. Plant is a published author whose research interests include early phase clinical trial design for pediatric brain tumors. Her most recent project is a phase 1 clinical trial for a neo-antigen heat shock protein vaccine for diffuse intrinsic pontine glioma, a fatal brain tumor. She hopes to enroll patients in this trial within the next year. She considers herself fortunate to have worked under world-renowned immuno-oncologists Dr. Glenn Dranoff and Dr. Jerome Ritz at Dana Farber Cancer Institute in Boston. There, she won the Young Investigator Award for a project evaluating clonality of T cell receptors in pediatric gliomas.

Following medical school at Stanford University, Dr. Plant finished her residency at University of California, Los Angeles. Her fellowship training in pediatric hematology/oncology was completed at Boston Children’s Hospital. She received additional training in clinical trials and public health at Harvard Chan School of Public Health.

“I was attracted to CHOC because the hospital prioritizes excellent clinical care of patients above all else,” says Dr. Plant. “The hospital’s commitment to patient-and-family-centered care is something I wholeheartedly support. Cancer affects everyone in the family – physically, emotionally, psychologically and sometimes even financially. If we fail to address these issues, we are not completely caring for our patients and their families.”

Learn more about the Hyundai Cancer Institute at CHOC Children’s.

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CHOC Walk in the Park: Meet Team Timmaree

By Debbie Hicks, CHOC Walk in the Park participant 

At 7 years of age, our daughter Timmaree was diagnosed with a rare form of eye cancer called orbital rhabdomyosarcoma. In the process of enduring extensive chemotherapy treatments, she lost her hair, but never lost her faith, smile, resilience, and trust in us as parents to ensure she received the best possible care. We turned to the Hyundai Cancer Institute at CHOC Children’s.

Timmaree bonded with pet therapy dogs during her time at CHOC.
Timmaree bonded with pet therapy dogs during her time at CHOC.

To help pass the time during her lengthy hospital stays, Timmaree enjoyed painting rocks. Her first piece of art was a butterfly. She drew a cancer ribbon and then began doodling around it. She excitedly shouted out, “This is a cancer ribbon butterfly!” Timmaree’s rock painting quickly caught the attention of CHOC doctors, nurses and volunteers, as well as other patients, who lined up outside her room to get a glimpse of her special creations. Timmaree never intended on selling them, but many people made generous donations in hopes she would buy something extra special for herself.

After fighting a tough and courageous battle for nearly two years, Timmaree passed away on Dec. 21, 2008, just eight days after turning 9. She was a hero to thousands of people who had the opportunity to meet her, helping change people’s perspectives about life. Many feel honored they have one of Timmaree’s limited edition painted rocks with her signature.

A selection of Timmaree’s limited edition painted rocks.
A selection of Timmaree’s limited edition painted rocks.

Timmaree is with us in spirit. To celebrate her legacy and to brighten the day for patients, we bring the Team Timmaree Rock Craft Day to CHOC the last Sunday of every month. By hosting garage sales and bake sales, we raise money to provide 250 rock painting kits each month — for a total of 18,000 kits since we started seven years ago. In addition, we have proudly participated in the CHOC Walk in the Park since 2007. Our team, donning t-shirts with Timmaree’s butterfly art, has raised more than $260,000.

The 2016 CHOC Walk marks our team’s 10th anniversary, and we can’t think of a better way to honor Timmaree and CHOC than serving as an ambassador family. CHOC was our “home away from home” for two years, during which time we witnessed inspiring miracles and courageous battles. For that reason and so many others, we look forward to joining thousands of walkers at the Disneyland Resort on Oct. 30, 2016. Together, we’ll take steps in support of CHOC and the children and families they serve.

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CHOC Nurse, Patient Share Love of Music

Music has been a bright spot for Christine throughout her entire life – and especially while undergoing treatment at the Hyundai Cancer Institute at CHOC Children’s.

And when CHOC nurse Erika Crawford heard Christine playing a familiar song on a piano while receiving chemotherapy treatment one day, she spoke up.

“I told her I knew that song on the ukulele, and that we should play together,” Erika recalls.

Since then, the pair has regularly jammed together while Christine, 17, is in CHOC’s Outpatient Infusion Center. Inspired by Erika, Christine started learning the ukulele and the pair will tinker on songs together.

They even gave their duo a name: E.C. Teal, which incorporates their initials and the color they both happened to wear one day.

Because infusions can take hours, music helps Christine pass the time and take her mind off her condition.

“I’ve always loved music,” she says. “Going through cancer made me realized just how much I loved music.”

Erika began playing the ukulele only a year ago. She was previously learning the guitar and thought its smaller cousin might help her learn faster. And now, it serves as another way for her to connect with patients like Christine.

“It’s fantastic,” she says. “It’s the best part of the job.”

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Once a CHOC Oncology Patient, Now an Oncology Nurse

As a typical, happy-go-lucky six-year-old, Shaina was playing outside with her brother before dinner time, when her back started hurting.

She laid down on the couch to rest, but when her mom called her for dinner, she was too weak to even make it to the table. A trip to a local emergency room followed, and kidney stones were suspected. She was eventually transferred to CHOC Children’s. After additional testing, Shaina was diagnosed with neuroblastoma, a cancer that often starts in the tissue of the adrenal glands, on top of the kidneys. What they thought originally might be kidney stones, was actually the pain of her kidneys being crushed by a tumor that was growing inside her.

She underwent emergent surgery two days later to remove the tumor and one of her kidneys, and overcame the odds that were stacked against her.

choc oncology
Shaina at age 6, as a patient at CHOC

“I was so young when I was diagnosed, so I don’t remember a lot of the scary parts of that time, but ever since, my family has been telling me stories about how wonderful my physicians and nurses were to our whole family during that time,” she says.

Those stories are part of the reason that six-year-old Shaina grew up to be a hematology/oncology nurse with the Hyundai Cancer Institute, in same hospital that saved her life almost two decades ago.

After surgery, Shaina was in and out of the hospital for chemotherapy treatments and a stem cell transplant. The first one hundred days after such a transplant are crucial to ensure a patient’s health and safety, and her family had to be abundantly cautious that her environment was as clean and safe as possible. At the end of those hundred days, her family threw a big party at their house to celebrate making it over the hump.

She relapsed a few months later.

Experimental treatment at various hospitals throughout Southern California followed, and three years later, she was cancer free for good.

Even during this time, Shaina knew she would return to CHOC someday.

choc oncology
As a child fighting cancer, Shaina knew should would return to CHOC someday as a nurse.

Fast forward a few years and Shaina was a high school student. Searching for volunteer hours as part of her curriculum, she sought out volunteer opportunities at CHOC as a way to say thank you to the hospital that saved her life as a child.

She joined the Child Life team as a play room volunteer, helping normalize the hospital environment for patients utilizing the same play rooms she had sought an escape in while she was a patient.

She now works alongside some of the same physicians and nurses that cared for her as a child.

One of her primary oncology nurses, Dana Moran, gives her a big hug whenever they pass each other in the hallways.

“Shaina was so little when she was a patient here- she was so fragile and scared, but she was a strong kid with a strong personality, and that helped her get through her challenges,” Dana says. “Now it makes me proud to see her happy and healthy and back at CHOC caring for other kids.”

Her pediatric oncologist, Dr. Lilibeth Torno, keeps a photo from Shaina’s nursing school graduation on the desk in her office.

“I am really proud to have seen her grow and mature as a person and as a colleague in oncology,” Dr. Torno says. “I have seen her strength as she overcame challenges that cancer survivors go through and she did it successfully!”

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Sibling Caretaker Becomes CHOC Hematology/Oncology Nurse

She was barely through her first year of high school, but Emily Gruendyke was determined to be a nurse. A pediatric oncology nurse, specifically. The young teen carefully mapped the steps she would take to achieve her career goal. Nothing was going to stand in her way. And, sure enough, today Emily is a hematology/oncology nurse at the Hyundai Cancer Institute at CHOC Children’s.

Emily’s family supported her calling from day one, especially her younger sister Amanda. Better than anyone, Amanda knew Emily would be a great oncology nurse. She experienced Emily’s nurturing care often, especially after being diagnosed with a type of cancer called neuroblastoma. The diagnosis—delivered when Amanda was 9 and Emily was 14—affected the entire family. Emily quickly learned just how isolating the disease could be — not just for the patient, but for parents and siblings.

choc hematology/oncology
Emily and her late sister Amanda, at Disneyland.

“During the first year of Amanda’s treatment, she and my mom spent 200 nights at the hospital, which was about an hour from our home. I would only get to see them on weekends. And, as much as my friends cared, they didn’t really understand what we were all going through,” explains Emily.

When Emily was able to visit Amanda at the hospital, she noted the impact nurses had on her mom and sister.

“My hospital visits really opened my eyes to what nursing could do. I witnessed the difference a good nurse had on my mom and Amanda,” says Emily.

One experience was particularly impactful for Emily.

“The first night my mom and sister were home, following the start of her treatment, a nurse stopped by the house to show my mom how to hook up all of the medical equipment. Though I don’t blame the nurse, she breezed through all of the steps and didn’t really make sure my mom was comfortable with what she had to do. Later in the evening, I remember my mom crying at not being able to recall everything. Another nurse came out and did an amazing job educating my mom. More than that, the nurse empowered my mom as a caregiver. I knew that was the kind of nurse I wanted to be,” shares Emily.

As a CHOC hematology/oncology nurse, Emily is steadfastly dedicated to providing her patients’ families with the knowledge and confidence to take care of their children. She works hard to help her patients and families get through treatment and adjust to their “new normal.”  And, just as she was inspired by her sister’s strength, she admires the inspiring resiliency of her patients. She also takes the time to acknowledge her patients’ siblings.

“A cancer diagnosis is tough on everyone and sometimes siblings can get inadvertently left out. I understand siblings’ point of view. I take time to not only ask if they have questions about cancer and involve them in the care—if that’s what they want—but I also ask them about their own interests,” says Emily, who is proud to be part of a team committed to patient- and family-centered care.

Emily’s sister lost her battle to cancer after a brave 12-year fight. Emily had been CHOC hematology/oncology nurse for four years at that point, of which Amanda was very proud. And despite the difficulties that came with having a sister with cancer, Emily’s family was grateful that she found a calling that would positively impact so many other hurting families. Emily can’t imagine doing anything else.

“Even though my sister passed away from her cancer, which was devastating to our family, I feel so strongly that being a pediatric oncology nurse is what I was made to do. I would not want any other job in the world. And I know Amanda wouldn’t want me doing any other job either,” says Emily.

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Lessons Learned During a Senior Year Spent Fighting Cancer

aya

By Claire Nakaki, CHOC Children’s patient

Hello there! My name is Claire Nakaki. I am a freshman in college, but a little over a year ago, I was a soon-to-be high school senior when I was diagnosed with osteosarcoma, a type of bone cancer. I was a healthy, active volleyball player and I could not understand why this had happened to me. The initial shock was debilitating; cancer had never been something I saw in my future and certainly not my present. I began chemotherapy the month before school started, knowing that I was going to be completing my senior year of high school from a hospital bed. However, after my head and heart had cleared from the turmoil that my diagnosis had brought upon me, I realized that the upcoming year was really just a year. While cancer was something that I knew was going to affect me for the rest of my life, I refused to let it control my life. My surgeon Dr. Nassif asked me before my big surgery (which removed the tumor and replaced the bone with a prosthesis) to set some goals for the upcoming year. Two prominent goals immediately came to mind: I wanted to walk at graduation with my class, on time, without a walker, a wheelchair, or crutches, and I wanted to attend a four-year university after that. These goals did not seem far off, but I unknowingly delved into the hardest year of my life.

I found myself wanting to meet other patients my age almost immediately, begging the Child Life staff to introduce me to any other teens on the floor. I found so much comfort in knowing that there were other teenagers like me experiencing something similar. While no one’s story is identical, discussing the things we do have in common definitely helps soothe an anxious mind. I attended an AYA (Adolescent and Young Adult) support group meeting in my first few months of treatment and then the next following few months, then as often as I could. I had no idea it was even a support group until almost six months in. It felt more like a group of friends who coincidentally have this one big thing in common rather than a solemn meeting to talk about our hardships. Sure, we occasionally brought up things we were going through when someone needed support, but other than that it was just a safe space to be accepted with open arms. This AYA group has become like a second family to me, a fun group of people in all different stages of treatment and survivorship with whom I feel comfortable discussing anything and everything with. I do not know where I would be in my survivorship without this group of people, as well as the entire Child Life staff and AYA facilitators.

I am often asked if the experience was difficult and if I am sad that I missed my senior year of high school. I always have the same answer. Yes, of course it was difficult. I had no idea how difficult it would be. And I am painfully aware that my treatment went much smoother than most. I stayed on the same treatment plan and had very few bumps along the road. I am sure that my classmates enjoyed their senior year at school, but I would not trade this past year for any other situation. I truly mean that. I have learned so much from the genuinely kind and empathetic people that I met at CHOC, both patients and staff members. I reiterate time and time again that I feel so lucky to have had 17 years of life before cancer entered my life and I know that I have many more to come. I met so many younger kids during my stay at CHOC, mainly just a “hello” in the hallway, but there were a small few that I really got to know personally. These kids hold such a special place in my heart. I served as somewhat of a mentor to a few, due to my age and stage in my treatment, what kinds of procedures I had undergone, and what kinds of machines I was attached to. The kids I got to know made such a huge impact on my general attitude towards life and I truly hope that I made a positive impact on them. One piece of advice that I want everyone who goes through cancer to grasp is that no matter how bad you feel or how hard it is to meet your daily goals, your journey is always just one day at a time. It is so important to remind yourself that every day is just 24 hours. All you have to do is just get through the day. Take every step of the way just one day at a time. Soon enough, you will begin to see the light at the end of the tunnel.

aya

As I mentioned in the beginning of the post, I am now a first-year college student, which means that yes, I did meet my goals. I finished the last step of my treatment and was released from the hospital on June 9th and walked at my graduation without a wheelchair, a walker, or crutches one week later. I was accepted to college in the middle of my treatment, and completed all of my required courses in order to attend in the fall. I achieved these goals with a year of incredibly difficult work and with the unconditional support from my family, friends, and CHOC staff. There will always be things I cannot do because of what happened to me and I still go to physical therapy twice a week and have to take extra precautions in almost everything I do, but I am so happy to be back in the real world, living my new normal.

 Learn more about the Hyundai Cancer Institute at CHOC Children’s.

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Oncology Patient Returns to CHOC as Oncology Nurse

In honor of Childhood Cancer Awareness Month, we share a poem written by Kim, a registered nurse in the hematology/oncology unit at CHOC Children’s, at the time she finished her training. Kim is a cancer survivor and former CHOC patient.

Serendipity

I had no idea what this was going to bring up

All these memories and feelings I have folded so neatly in a cup

Tucked away never again to be touched

Walking back into CHOC, oh how I have forgotten so much

You see, I once had cancer too

I came back as a nurse to see what I could do

I once told my own nurses, now peers, I will be back. Something I am sure they heard before

10 years later I walk through CHOC’s door

As a registered nurse I am proud to be

But I never underestimate the patient that is still inside of me

People have told me it takes certain strength to face it again

“Doesn’t it remind you of all your pain?”

My pain?, I think, I am one of the lucky ones.

I get to come to work and I have fun

I am allowed to make funny faces

I make kids laugh and participate in car chases

I am able to share in life’s precious moments daily

Except for the need of possibly doing a Foley

Even when I am running around like a chicken with no head

I will always take time for that scared kiddo sitting in the bed

There are times when I step back and remember

When that was once me waiting for a cure

This hasn’t been easy, seeing the chemo’s and procedures

And sitting through those late effects lectures

Sometimes when the day has been hard I ask myself, “Why did I pick THIS? What else could I have been?”

But I quickly remind myself I didn’t pick this- it picked me way back when.

I am surrounded by hope, a side people do not see

For I am a proud survivor and now registered nurse of pediatric oncology.

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CHOC Opens Wing for Adolescent, Young Adult Cancer Patients

Where would you want to heal?

Nick Meza immediately knew his answer. As a lifelong Californian and committed Eagle Scout, his life was dotted with dips in the pool, canoe adventures along the river, and seaside snorkeling expeditions before being diagnosed with cancer two years ago.

“It is when I am in the water that I find the serenity and courage to stay positive and focus on what is right with the world,” says Nick, 20. “When I am in, around or close to a body of water, I forget about troubles and my life’s struggles and suddenly water becomes my life, my strength and my healing place.”

Now, Nick – and his fellow adolescent and young adult (AYA) patients at the Hyundai Cancer Institute at CHOC Children’s – will get his wish, at least virtually.

infusionarium

A young cinematographer was paired with Nick to create an immersive film capturing life under the sea; other videos explored healing scenarios suggested by other patients. These films will offer Nick and his fellow patients a brief escape from their daily battles while broadcasted on large, vertically oriented television screens inside the lounge of CHOC’s newly opened AYA wing.

The lounge and multimedia system offers patients an experience similar to what’s provided by CHOC’s Infusionarium, which opened in 2014 inside the outpatient infusion center and provides an immersive, healing environment for patients.

It also provides AYA patients with a dedicated place to play video games, watch television and movies, or just hang out with their peers – a luxury Nick longed for when he was newly diagnosed with leukemia and found himself among the oldest CHOC patients.

“It’s nice to walk outside of your room and find a place to hang out,” he says. “You can take your brother and friends there and play video games. It’s a space for the teenagers – not the little kids.”

The AYA wing also includes four specially outfitted patient rooms. Dedicated to this unique patient population, room amenities include vibrant paint colors, customizable wall art, and portable, larger television sets. These mobile units share the library of patient-directed videos, as well as educational “cancer survival” videos and eBooks that feature CHOC experts.

The lounge was developed by Reimagine Well, a company that uses emerging technologies and digital media to create immersive healing environments.

AYA lounge

The AYA wing dovetails with the Cancer Institute’s recognition that teens and young adult patients with cancer have unique needs. In fact, CHOC’s is among the few pediatric cancer programs in the country with dedicated services for this patient population.

“When it comes to treating an adolescent or young adult with cancer, their medical needs are unique – but so are their psychosocial needs,” says Dr. Leonard Sender, medical director of the Hyundai Cancer Institute at CHOC Children’s. “The AYA wing will give these patients a venue to heal on their own terms and a place to call their own.”

CHOC Children’s Joins National Cancer Consortium

The Hyundai Cancer Institute at CHOC Children’s took yet another bold step in its fight against pediatric cancer by uniting with Cancer Moonshot 2020.  CHOC is one of 10 founding members of a national pediatrics consortium announced at a press conference on Feb. 18, 2016, and dedicated to accelerating cancer cures through immunotherapy.  All partners will seek to apply the most comprehensive cancer molecular diagnostic testing available, and leverage proven and promising combination immunotherapies and clinical trials. Real time data sharing is designed to accelerate clinical learning for all consortium members.

“The Pediatric Cancer Moonshot 2020 will attempt to cure all the numerous types of pediatric cancer with the least toxicity by harnessing patients’ own immune systems and using the tumors’ unique genomic mutations to create individualized cancer vaccines,” explains Dr. Leonard Sender, medical director, Hyundai Cancer Institute.

Dr. Sender has positioned CHOC a leader in the field of innovative genomic medicine techniques. In addition to being designated a Caris Center of Excellence for its commitment to precision medicine, CHOC is a participant in the California Kids Cancer Comparison, bringing the benefit of big data bioinformatics to its patients. And, CHOC recently enrolled its first patient in a multi-center clinical study for the treatment of relapsed or refractory acute lymphoblastic leukemia (ALL) with investigational immunotherapy.

“CHOC has studied whole genome sequencing for several years, and our team recognizes its value to clinical decision making. Now, with the availability of the next generation of molecular diagnostics, we are excited by the acceleration of knowledge that this system will provide and are honored to be a founding member of such an important initiative,” says Dr. Sender.

20140916_2770 Three major drivers of the Cancer Moonshot 2020 Pediatrics Consortium are:

  1. The recognition that cancer is caused by any one of a multiple number of genetic mutations, with thousands of molecular alterations presenting within each pediatric cancer patient. Consortium members and their patients will benefit from the most comprehensive molecular diagnosis in the market today.
  2. The significant fragmentation across the healthcare ecosystem. More specifically, pharmaceutical drug development often occurs in silos with limited ability to share clinical information. Consortium members recognize that collaboration across medical and scientific communities will help remove barriers to accelerated progress in the war on pediatric cancer.
  3. The lack of a comprehensive data sharing system, including participation by pharmaceutical companies, for individual children cancer centers. Consortium members will have access to Cancer Moonshot 2020’s national, robust and scaled cloud infrastructure enabling the ability to share data in real time and provide access to breakthrough knowledge.

In addition to CHOC, founding members of the Cancer Moonshot 2020 Pediatrics Consortium are:

  • Ann & Robert H. Lurie Children’s Hospital
  • Children’s Healthcare of Atlanta
  • Children’s Hospital of Philadelphia
  • Children’s Hospital of Pittsburgh of UPMC
  • Duke Department of Pediatrics at Duke University School of Medicine
  • Floating Hospital for Children at Tufts Medical Center
  • Huntsman Cancer Institute at the University of Utah and Intermountain Primary Children’s Hospital
  • Phoenix Children’s Hospital
  • Sanford Health

Innovative Cancer Treatment: Abbey’s Story

Abbey and Jaime Serna, phlebotomist at CHOC Children's hospital.
Abbey Schemmer and Jaime Serna, phlebotomist at CHOC Children’s Hospital.

While many teenaged girls might balk at wearing a medical device on their shaved heads 18 hours a day, Abbey Schemmer didn’t blink an eye.

After all, the 16-year-old CHOC Children’s patient was fighting for her life.

Following the diagnosis of two brain tumors – including a rare, extremely aggressive type called glioblastoma multiforme – and several surgeries, Abbey and her family turned to a new technique to halt the tumors’ growth: tumor treating fields, or TTF.

TTF uses electromagnetic forces to prevent this type of tumor from dividing and growing. TTF was only recently approved for adult use, and as a pediatric patient, Abbey received special clearance to use ahelmet-like device that administers the treatment.

Worn continuously for 18 hours a day, the helmet places electrodes directly on Abbey’s scalp, which requires her to shave her head every few days so that the helmet’s electrodes directly touch her skin. Abbey wears the device’s power source in a backpack.

“This is not an easy treatment,” said Dr. Violet Shen, Abbey’s oncologist at CHOC. “But she was willing to do that and is wearing her helmet and head dressings and still going on with her life.”

Following about nine months of TTF treatment and chemotherapy, Abbey’s tumor shows no signs of major progression, Dr. Shen said.

The progress is a marked departure from expectations when Abbey was diagnosed in early 2013 following complaints of nausea, headaches and lethargy.

“We thought we had a sick little girl,” said Ken, Abbey’s father. “We were thinking she wouldn’t live for very long.”

Abbey immediately underwent surgery to remove the tumor, followed by chemotherapy and radiation. She stayed in good spirits and continued with school, but after she experienced seizures in summer 2014, it was clear the glioblastoma had grown back.

After another surgery to remove Abbey’s right frontal lobe, the family explored other methods to curb the tumor’s growth, and ultimately turned to TTF.

“It was cool that it could help my cancer,” Abbey said.

In the months following, Abbey has continued in school and she’s looking forward to beginning driver’s education. Her schoolmates have rallied around her, and taken an interest in her unique treatment, Abbey said. “People ask me questions,” she said. “They think it’s fun because my backpack generates heat. They ask, ‘Can I see your heater?’”

If this treatment continues to work, Abbey could feasibly continue to wear the helmet for the rest of her life, Ken says. For now, her family is taking the treatment one day at a time.

“It’s been working,” Dr. Shen said. “Very few people survive with this tumor for six months, let alone a year. Abby’s done well. She’s very vigorous and still attending school. Abbey’s definitely a fighter.”

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