Kieran’s Balancing Act: Living with Cystic Fibrosis

For young gymnast and CHOC Children’s patient Kieran Cacciatore, life is a balancing act in more ways than one.

Living with cystic fibrosis since age 1, Kieran is an accomplished gymnast who recently competed at a national level and will start middle school this fall.

“I can’t say enough about what it’s been for him and how he’s been able to succeed regardless of his health,” his mother, Robin, says. “What he’s accomplished this year is amazing.”

gymnast with cystic fibrosis

Kieran has become an expert at balancing his athleticism, school work and treatment. Like his gymnastics practice schedule, Kieran’s daily care routine is arduous: He swallows six capsules before every meal and snack to aid digestion. Twice daily, he has sessions with a nebulizer, which allows him to inhale medication that rehydrates his nasal passages, and a special vest that vibrates against his chest to loosen mucus.

As a baby, Kieran seemed to always be sick, his mother recalled, and frequent doctor visits, tests and medications didn’t help. When Robin discovered one morning that Kieran’s facial muscles had weakened on one side, like he’d suffered a stroke, she immediately rushed him to the hospital.

There, after a series of tests, Kieran was diagnosed with cystic fibrosis. The genetic condition leads to frequent lung infections and causes breathing difficulty and digestive system problems.

“We never had health problems, and here we were talking to gastroenterologists, pulmonologists and social workers,” Robin said. “I wanted to get educated and make this disease management a part of our daily life. It wasn’t easy, but we had a very good support system.”

Robin was determined not to let illness isolate Kieran or the family. So, they attended athletic events, enrolled Kieran in school, and began gymnastics training when he was 4.

Already a good climber, Kieran was a natural, the family discovered. Weekly practices soon turned twice weekly, and a after a year, he joined a team.

Now 12, Kieran’s longest practice is a weekly five-hour session – and his hard work has paid off. He recently competed against more than 200 athletes at USA Gymnastics’ 2017 Men’s Junior Olympic National Championships, and progressed to the final rounds.

Kieran’s interest in gymnastics is likely only to grow, his mom says.

“I do think he’s going to stick with it,” Robin says. “It’s as much a part of his life as the treatments are.”

Learn more about our Cystic Fibrosis Center

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CHOC Included Among Nation’s Best Children’s Hospitals in U.S. News Survey

CHOC Children’s has been named one of the nation’s best children’s hospitals by U.S. News & World Report in its 2017-18 Best Children’s Hospitals rankings.

CHOC ranked in seven specialties: cancer, diabetes/endocrinology, neonatology, neurology/neurosurgery, orthopedics, pulmonology and urology, which earned a top 20 spot on the coveted list.

According to U.S. News, the Best Children’s Hospitals rankings were introduced in 2007 to help families of children with rare or life-threatening illnesses find the best medical care available.

The 11th annual rankings recognize the top 50 pediatric facilities across the United States in 10 pediatric specialties.

The U.S. News Best Children’s Hospitals rankings rely on clinical data and on an annual survey of pediatric specialists. The rankings methodology considers clinical outcomes, such as mortality and infection rates, efficiency and coordination of care delivery and compliance with “best practices.”

“At CHOC Children’s, we are steadfastly committed to delivering high-quality, safe and reliable health care to our patients,” said Dr. James Cappon, CHOC’s chief quality officer. “Recognition from U.S. News of our excellence in these seven subspecialties validates our efforts, but also provides our patients and families with even more assurance of our commitment to excelling in all areas of care.”

“The pediatric centers we rank in Best Children’s Hospitals deliver exceptionally high-quality care and deserve to be recognized for their commitment,” U.S. News Health Rankings Editor Avery Comarow said. “Children with life-threatening illnesses or rare conditions need the state-of-the-art services and expertise these hospitals provide every day.”

Learn more about survival rates, adequacy of nurse staffing, procedure and patient volume, availability of programs for particular illnesses and conditions and more. 

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U.S. News Names CHOC One of the Nation’s Best Children’s Hospitals

From treating the most complicated cases of epilepsy and repairing complex urological conditions, to curing cancer and saving premature lives, CHOC Children’s physicians and staff are committed to delivering the highest levels of safe, quality care. That commitment has earned CHOC its most recent accolade:  inclusion on the coveted U.S. News & World Report’s Best Children’s Hospitals rankings.   CHOC ranked in eight specialties: cancer, neonatology, neurology/neurosurgery, pulmonology, orthopedics, gastroenterology and GI surgery, diabetes and endocrinology, and urology, which earned a “top 25” spot.

U.S. news

According to U.S. News, the Best Children’s Hospitals rankings are intended to help parents determine where to get the best medical care for their children. The rankings highlight the top 50 U.S. pediatric facilities in 10 specialties, from cancer to urology. Of the 183 participating medical centers, only 78 hospitals ranked in at least one specialty. For its list, U.S. News relies on extensive clinical and operational data, including survival rates, clinic and procedure volume, infection control measures and outcomes, which can be viewed at http://health.usnews.com/best-hospitals/pediatric-rankings. An annual survey of pediatric specialists accounts for 15 percent of participants’ final scores.

“The Best Children’s Hospitals highlight the pediatric centers that offer exceptional care for the kids who need the most help,” says U.S. News Health Rankings Editor Avery Comarow. “Day in and day out, they offer state-of-the-art medical care.”

Dr. James Cappon, chief quality and patient safety officer at CHOC, points to the survey as an invaluable tool for him and his colleagues to evaluate programs and services, determining best practices, and making plans for the immediate and long-term future.

“CHOC is certainly honored to be recognized once again by U.S. News. But our dedication to serving the best interests of the children and families in our community is what truly drives us to pursue excellence in everything we do. Our scores, especially in the areas of patient-and-family-centered care, commitment to best practices, infection prevention, breadth and scope of specialists and services, and health information technology, for example, reflect our culture of providing the very best care to our patients,” explains Dr. Cappon. To hear more about CHOC’s commitment to patient safety and quality care—and what parents need to know— listen to this podcast.

CHOC’s culture of excellence has it earned it numerous accolades, including being named, multiple times, a Leapfrog Top Hospital. Additional recent honors include the gold-level CAPE Award from the California Council of Excellence; Magnet designation for nursing; gold-level Beacon Award for Excellence, a distinction earned twice by CHOC’s pediatric intensive care unit team; “Most Wired Hospital”; and The Advisory Board Company’s 2016 Workplace Transformation Award and Workplace of the Year Award. Inspiring the best in her team, CHOC’s President and CEO Kimberly Chavalas Cripe was recently named a winner of the EY Entrepreneur of the Year Award in the “Community Contributions” category.